Happy 65th Birthday Dad and Happy Birthday Nick!
We are all doing great! William is well. Recently he had a high temperature which resolved without antibiotics, that immune system is really doing it's stuff. We also thought that he might have been getting chicken pox after a close encounter but we gave him a precautionary extra dose of immunoglobulins and he didn't, phew! Mum has had her last dose of chemo (fingers crossed) and is recovering from that, she has been amazing through it all. We are just trying to do 'normal' things and make the most of everything. We went camping the other weekend in, yes you've guessed it north Devon and even managed to fit in another 'Just a walk' press interview!
Thanks for checking in on us.
Love to you all.
Monday, 30 June 2008
Tuesday, 3 June 2008
3rd June
This brave and inspiring man has only just come to my attention, where have I been? This is a very honest and massively moving account by Adrian Sudbury about his battle with leukemias and through bone marrow transplant. He is using the time that he has left to raise awareness about bone marrow transplant http://baldyblog.freshblogs.co.uk/
Sunday, 1 June 2008
Just a launch on the beach
We had a fantastic day on the beach at the launch party. To see some pictures go here....www.justawalktothebeach.org/pages/morepages/gallery.htm
We had a digital camera treasure hunt, won by Andy and co (some very impressive sprinting to the carpark to get the camper van shot clinched the deal). Special mentions must also go to Ben and Sophia for moving the least and getting all the shots, zooming in on a camper van on the road was certainly a clever move, Nick and Bryony also showed exceptional dedication when they went to the beach shop and asked if they had a turtle that they could photograph (and after some rummaging in the store room found that they did!)
The sandcastle competition was certainly sandy. An impressive number of castles were built, beautiful flags displayed and a mermaid crafted. However the winners were Nick and Bryony with their inspired coffee and cake castle.
Thanks to Grandma Sue and Granma Ruth for their exemplary judging.
The leaky bucket relay was hilarious. The sea was so far away that we dug a well to race to but water supplies were limited so buckets of sand made their was back rather than water. After some questionable but highly effective tactics by Nicki the girls team were victorious.
Nicki made our delicious 'just a walk cake' with caster sugar sand, soon mixed with real sand but was much enjoyed by everyone.
Can we have a big cheer... 'HOORAH' for Tasha and Jim who cycled for 8 hours and covered about 50 miles over Exmoor to be with us on their Tandem. Sadly they didn't make it in time to get to the beach party but their achievement was amazing. To their enormous credit they also cycled back (another 5+ hours) to the station battling gale force winds, rain and thundering traffic on the Monday as many campers fled a stormy Devon.
We had a great weekend, barbeques, a pub lunch, noisy student neighbours, lots of flapping canvas, soggy stuff, catching some waves and a lot of splashing about, fabulous cooked breakfasts (cheers Ben!), walks on the beach and a few beers and most importantly amazing company. Thank you all for coming and supporting us and being the fabulous people that you all are!
We had a digital camera treasure hunt, won by Andy and co (some very impressive sprinting to the carpark to get the camper van shot clinched the deal). Special mentions must also go to Ben and Sophia for moving the least and getting all the shots, zooming in on a camper van on the road was certainly a clever move, Nick and Bryony also showed exceptional dedication when they went to the beach shop and asked if they had a turtle that they could photograph (and after some rummaging in the store room found that they did!)
The sandcastle competition was certainly sandy. An impressive number of castles were built, beautiful flags displayed and a mermaid crafted. However the winners were Nick and Bryony with their inspired coffee and cake castle.
Thanks to Grandma Sue and Granma Ruth for their exemplary judging.
The leaky bucket relay was hilarious. The sea was so far away that we dug a well to race to but water supplies were limited so buckets of sand made their was back rather than water. After some questionable but highly effective tactics by Nicki the girls team were victorious.
Nicki made our delicious 'just a walk cake' with caster sugar sand, soon mixed with real sand but was much enjoyed by everyone.
Can we have a big cheer... 'HOORAH' for Tasha and Jim who cycled for 8 hours and covered about 50 miles over Exmoor to be with us on their Tandem. Sadly they didn't make it in time to get to the beach party but their achievement was amazing. To their enormous credit they also cycled back (another 5+ hours) to the station battling gale force winds, rain and thundering traffic on the Monday as many campers fled a stormy Devon.
We had a great weekend, barbeques, a pub lunch, noisy student neighbours, lots of flapping canvas, soggy stuff, catching some waves and a lot of splashing about, fabulous cooked breakfasts (cheers Ben!), walks on the beach and a few beers and most importantly amazing company. Thank you all for coming and supporting us and being the fabulous people that you all are!
Monday, 12 May 2008
Monday 12th May
It’s been a while, but as they say no news is good news. William is progressing really well. We went up to GOS last week and can now visit Granma and Poppa (and their exotic birds) and go to shops and toddler groups! We have stopped all his meds (not counting the penicillin which he gets forever!) now (probably including the sub cut immunos just waiting on the latest results) so now his new immune system really gets put to the test so fingers crossed. Back to GOS in 3 months all being well. We have updated our car and now have a big blue surf bus ((as Rob likes to call it) in reality it’s an 7 seater Fiat) lots of space for camping equipment and dog! We have been enjoying the sunshine and being a family and working hard on Just a walk to the Beach. We’re getting excited about the Big Launch Picnic, the weekend after next and have an impressive hand crafted 3 metre high flag! Will post again after the launch picnic……
Monday, 28 April 2008
Friday, 11 April 2008
Friday 11th April
We went up to GOS on Wednesday, which went well. William’s immune recovery continues..hoorah! Another tiring day but cheered to see Kellar much improved. We have restarted started sub cut Immunoglobulins at home until he makes enough of his own. We will be back up to GOS in a month. We are starting to see a few more (well) children in small numbers. William spent a lovely afternoon last week in a den with Eleanor and last weekend had a fabulous time with Sophia and Luca in the park.
Thursday, 27 March 2008
We've come a long way, baby.
We’ve come a long way in the last 6 months. We are so grateful to everyone who has supported us during this time. Because of the generosity of a stranger William has a brighter future and we have so much more to look forward to.
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