Monday 17th (ooh just realised it's six months today since we were admitted to GOS)

Went to Bath today and got our IV meds no problems. ‘They’ have decided that they want to take the Hickman line out. It was due out soon anyway but it’s easier to remove than disinfect it. We were offered to have it done in Bath but we would much prefer a specialist Children’s Hospital so either Bristol or GOS if you please! (also they have about 6 wards closed with the dreaded Noro virus in Bath at the moment)! So we are hoping that they will sort something out soon between them. In the meanwhile we will continue with the IV antibiotics. His blood results aren’t quite as good as they have been but I think that that is only to be expected after all despite all outward signs to the contrary he is fighting an infection.