Today was immunoglobulin day which went smoothly, despite realising too late that we were using the same leg as last week rather than alternating! No problems though and all done and dusted in time for a morning nap.
Otherwise, William's first ice cream all to himself was the very chocolatey highlight of the day.
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Hello and Welcome
Welcome to our blog chronicling William's Bone Marrow Transplant, a bit of general chit chat and any interesting, well we hope you will find them interesting, bits along the way. We look forward to your comments and if you have any questions or would like to send us a message do feel free to e mail us or leave a comment.
A bit about us
The Curtis family live not far from Bath. Robert is the Daddy and works for the National Trust as a gardener and enjoys being outside, he is the oldest sk8 boarder in the village. Catherine is the Mummy and is part of the Hairy Pot Plant Company http://www.hairypotplants.co.uk
Gillie is the dog (a black & white English Springer Spaniel, we couldn't afford the colour license, ha de ha) and guards us and makes big hairy muddy messes and we love him.
William is the boss and his birthday is 7th February, although he has problems with some of his genes the farming gene is prevailing. When not making sheep noises he is pointing at tractors and paddling in the sea in water deeper than his wellies.
Granma and Pappa Curtis live near Winchester. Pappa is a farm worker and Granma is a domestic goddess. Pappa is always the first port of call when anything needs fixing and Granma keeps us well fed.
Grandma and Grandpa Battam are retired and live in South Devon. They are in charge of monitoring tanker movements on their river, nothing sails in or out without them noticing. When not tripping the light fantastic they can be found cruising the high seas or the A303.
Gillie is the dog (a black & white English Springer Spaniel, we couldn't afford the colour license, ha de ha) and guards us and makes big hairy muddy messes and we love him.
William is the boss and his birthday is 7th February, although he has problems with some of his genes the farming gene is prevailing. When not making sheep noises he is pointing at tractors and paddling in the sea in water deeper than his wellies.
Granma and Pappa Curtis live near Winchester. Pappa is a farm worker and Granma is a domestic goddess. Pappa is always the first port of call when anything needs fixing and Granma keeps us well fed.
Grandma and Grandpa Battam are retired and live in South Devon. They are in charge of monitoring tanker movements on their river, nothing sails in or out without them noticing. When not tripping the light fantastic they can be found cruising the high seas or the A303.
Other sites of interest
- Just a walk to the beach - help us raise money for Jeans for Genes and The Sick Children's Trust
- The Sick Children's Trust - working towards children never having to be separated from their families while in hospital receiving treatment for serious illnesses.
- The Anthony Nolan Trust - Taking back lives from leukaemia (and Wiskott-Aldrich!) Get on the register and SAVE SOMEONES LIFE!
- The Hairy Pot Plant Company - eco friendly gifts, buy some now!
- The Primary Immunodeficiency Association - Supporting people with and promoting awareness of primary immunodeficiencies and disorders of the immune system. They are currently funding some amazing research into Wiskott-Aldrich working towards a cure through gene therapy.
- Jeans for Genes - Helping children with genetic disorders.
- National Blood Service - Give them a pint of the red stuff whenever you can!
- David McNally - a 3 year old with WAS in America who has undergone BMT. A detailed account full of useful information but also a chance to share this family's journey through transplant.
1 comment:
Hi,
I found your link on David McNally's websit. My son also had a BMT last year for WAS. We are wishing you good luck.
Amy
www.carepages.com JacobSchroeder
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