Sunday 28 September 2008

Day +365

It is now 365 days since William received his stem cells and his new immune system. He continues to amaze and delight us. We have all come so far in the last year and it means so much to have had you share our WAS journey.

This will be our last entry on this blog. I pray we will never have cause to start another but we have found it quite therapeutic chatting to our computers and sharing our experiences with you all.

If you ever wonder how we are and think of looking at the blog, give us a call or send an e mail instead.

If you have stumbled across our blog and find yourself in need of someone to chat to about bone marrow transplant or Wiskott-Aldrich Syndrome then do send us an e mail.

with love
Catherine, Robert and William xx

Sunday 21 September 2008

We walked (and cycled) to the beach....

Wow! Together we have raised over £10,000. Jeans for Genes and The Sick Children's Trust both want to pass on their thanks to you all for your efforts and to your generous supporters. You are an amazing bunch!
Lots of pics at www.justawalktothebeach.org

Friday 5 September 2008

News

As they say, no news is good news and William has continued to do remarkably well. We are not back up to GOS until February and the one year BMT anniversary is looming but before that it's Just a walk to the beach.
Just in case, dear readers you don't know to what I refer, this is our fundraising event for Jeans for Genes and The Sick Children's Trust. Many of our amazing families and friends (or as I think of them extended family) are travelling over 2,200 miles and getting sponsored to walk and pedal their way, carrying a surfcraft to Saunton Sands in North Devon for the big finish on Sunday 14th September. How mad are they? We are thrilled by their involvement and bowled over by their support. So thank you all, for everything and good luck and safe travels to you all. For more details see www.justawalktothebeach.org
We will post piccies here and on the Just a walk website so keep your eyes peeled.....