Sunday
109.6 miles and 2hrs 20mins is the distance and time by road between the computer I’m sitting at in our kitchen in Wiltshire and William and Catherine in G O S H in London. These figures are from the AA route planner I think it might take a little longer during rush hour. Today was my last visit until day 0 (BMT Thursday) I would like to thank South West trains for the shorting of my day with the family by an Hour and a half so they could dig up the line.
Once I finally made it to G O S H it was to find William and Cath watching Tractor Ted on the Laptop kindly sponsored by The Hairy Pot Plant Company check them out ideal gifts for those with and without green fingers. Those of you, who know William well, will know him as a busy little chap always on the move. Today and yesterday the treatment has begun to take its toll and all he wants to do is sit on a lap and watch D V Ds. He had the last of his Campath today and was hooked up from 11.30 till 5.30 hopefully it should be a shorter time tomorrow with the drips.
As Cath as mentioned William goes in to Green tonight so to break us in to it he had his meals from the green kitchen today. The rules are hot food must be eaten within an hour and cold food within four hours if not eaten it goes in the bin, so we had to keep William awake to make sure he ate something at lunchtime. Not that he as much of an appetite the only thing he really ate today was a yogurt (from Somerset) and some chocolate buttons sent up by Hannah (brought with her pocket money).
William had his final trip to the playroom this morning we built a train track and played for a little while. He will not be back there until his white blood cells reach a magic number probably in a months time. His final taste of freedom was to walk me to the Nurses station this evening from now on he does not leave his room.
Those of you who visited Cath and I when we lived on Moor Court Farm may remember during Foot and Mouth the bio security you had to go through. Arriving at the farm gate and having to get out of your car and wash your shoes and then drive your car over a disinfectant mat before driving down to the house a bit of a hassle specially if we where on our way back from the pub.
Now that Williams in Green this is the bio security we go through before we can hug him. On entering the unit you go in to the air lock a double door set up one side normal air the other filtered air. In the air lock you wash your hands above the wrists no watches can be worn first you uses soap then an alcohol gel. Outside William’s room is a cupboard with draws in. In one of the draws are plastic aprons because you had to open the draw you need to use the alcohol gel on the wall by the door before you go into the room. Once in the room you wash your hands again with soap and reapply the alcohol gel but you have forgot you bottle of water its sitting out on the cupboard so you remove the apron put it in the bin go back out of the room put on another apron and clean your hands all over again. Just in case William touches the bottle you now clean it with an alcohol wipe. This will reduce the risk of infection but we have been warned William will get an infection at some point.
Tomorrow or today as the clock on the computer now says 00.10 William has Grandma Battam to look forward to no doubt loaded down with goodies so Cath will have the wipes ready and Cath is off to lunch with Jo and Lisa. I’m off to my bed as Gillie will want walking in a couple of hours and Cath will post a new message when she can. Hope the spelling and grammar makes sense.
Rob.
PSPlease take my wife out to lunch she needs to leave the room at least once a day thank you
Monday, 24 September 2007
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9 comments:
Please look after my cabin boy I need him fit and well to sail in Tignsea
Love
Capt Pugwash
Dearest C, R and W
Thank you for keeping us updated it must be tiring but it is much appreciated. I hope to come and see you at the begining of October (lunch is on me).
Love and very hygenic hugs Bxxxx
Catherine, Rob and William, just to say I am thinking of you all and hope that all goes well this week and in the following ones.
Tom, in Kent - and sometimes Swanmore.
Keep smiling through - you are so brave. You are all doing fantastically. Give William a lovely hug from his Great Aunty and Uncle. We are all thinking of you. Will come and take you out soon - you will have a choice of uni haunts c 1980 or Sally's more recent 2005!!
Take great care.
Lots of love,
K & S
Hi Catherine, Rob and William,
Hope everything goes well this week - we will be thinking of you and keeping up to date by reading the blog.
Lots of love,
Sally and DJ xxx
P.S: Go for the more recent "haunts" if mum and dad take you out - 1980 was a long time ago!! :-)
Dear all, We are reading the blog and praying for you all daily. I know Sue will be back with Cathy tomorrow. I am glad you have the support of a wonderful husband and all your family, Cathy. We loved the photos of William which Sue showed us. Happy times, and they will come again. Much love, Margaret and Terry
Good to hear from Jo how well you're coping, Cath. Keep up the good work. Hope you enjoyed your time with the girls & managed to recharge your batteries a little. You're always in our thoughts.
Love Jane & Geoff x
Catherine, Robert and most importantly William,
You are all constantly in our thoughts and we are all praying for a smooth as possible ride for you all through this very trying and scary time. Luke sends a big hug and a high five to his playmate. If we find ourselves in London over the coming weeks I'll be in touch re: lunch xxx
Much love,
Victoria, Mike, Luke & Tamsin xxxx
We are looking forward to the day when William's beaming face appears through the entrance gate to say hello to us ladies in the hut. You are all in our thoughts and we are doing our best to transmit to you good strong loving positive ones, and a few hugs as well!
Lots of love Pam, Lynnette, Kathy
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