Friday +64 and Saturday (am) +65

William had tummy ache last night and although he slept well it returned this morning. They gave him some meds which seemed to help but he was pretty uncomfy in the meanwhile. This morning he woke up with a blotchy rash too and the doctor came and said, yes it was a blotchy rash which might be due to any number of factors, so thanks for clarifying that! He had some Piriton and it faded in it’s own time. We and the nurse had a hectic time this morning trying to get his pre meds ready, change one of the TPN machines (it wouldn’t hold a charge) and get a doctor to put a canula in by 10.30! (we got the earlier slot). They needed a canula because they don’t like to use the Hickman lines for a ‘dirty’ procedure, the nurse slathered him in anaesthetic cream but of course the doctor found (on his third attempt) a vein on the only bit of him that was cream free! Anyway eventually we were sorted and the porter took us on a trip around the hospital, in two lifts up to the suite, William was already a bit drowsy by then so not too bothered by his ride on a bed with his IV pole following closely behind. We got there and they gave him some more meds and he went a bit woosy then laid down. Rob and I beat a hasty retreat when they started to put a tube down his throat. We went for a coffee and then waited outside. They reverse the sedation and he cried for a bit (which they usually do) so we went in and he fell asleep in my arms. He then slept for another 4 hours without moving but snoring quite loudly! He woke for a couple of hours and then went back to bed and slept all night (more or less). He doesn’t seem to have suffered any ill effects from the procedure. They couldn’t see any visible damage to his insides (which is good) but they have taken tissue for biopsy and the microbiology will tell them more. We should get the results towards the end of next week. They must have cleared out all his tubing because it is very quiet on the nappy front. He has retained quite a lot of fluid over the last 48 hours so has put on quite a lot of weight and looks a bit puffy but they are adjusting his fluids so I’m sure that it will resolve quite quickly.

Exciting developments from the window, they are taking the crane down opposite, using another crane. There are men in yellow balancing very high above the street!

Also Happy Advent everyone!