Got more IV antibiotics today which was fine. Got a phone call from Bristol at 5.30pm tonight to say that they want to take his line out tomorrow (ok, we don’t need any notice~~! Rob is hosting a school visit in the morning which he has been preparing for for weeks (I know cos I have had to eat a lot of yoghurt cos he wants the pots to make bird feeders) They will ring us in the morning to confirm when they want us!! He will go in for his Immunoglobulins to make use of the hickman line for the last time (next time he needs them, we will do sub cutaneous like we used to) He is on the emergency list so will be fitted in as and when, probably late evening so we will stay in or early morning on Thursday and then we will come home. I am sure that Rob will keep you posted. Bit nervous, truth be told but we will be in safe hands and it will be amazing to have a line free William.
skip to main |
skip to sidebar
Hello and Welcome
Welcome to our blog chronicling William's Bone Marrow Transplant, a bit of general chit chat and any interesting, well we hope you will find them interesting, bits along the way. We look forward to your comments and if you have any questions or would like to send us a message do feel free to e mail us or leave a comment.
A bit about us
The Curtis family live not far from Bath. Robert is the Daddy and works for the National Trust as a gardener and enjoys being outside, he is the oldest sk8 boarder in the village. Catherine is the Mummy and is part of the Hairy Pot Plant Company http://www.hairypotplants.co.uk
Gillie is the dog (a black & white English Springer Spaniel, we couldn't afford the colour license, ha de ha) and guards us and makes big hairy muddy messes and we love him.
William is the boss and his birthday is 7th February, although he has problems with some of his genes the farming gene is prevailing. When not making sheep noises he is pointing at tractors and paddling in the sea in water deeper than his wellies.
Granma and Pappa Curtis live near Winchester. Pappa is a farm worker and Granma is a domestic goddess. Pappa is always the first port of call when anything needs fixing and Granma keeps us well fed.
Grandma and Grandpa Battam are retired and live in South Devon. They are in charge of monitoring tanker movements on their river, nothing sails in or out without them noticing. When not tripping the light fantastic they can be found cruising the high seas or the A303.
Gillie is the dog (a black & white English Springer Spaniel, we couldn't afford the colour license, ha de ha) and guards us and makes big hairy muddy messes and we love him.
William is the boss and his birthday is 7th February, although he has problems with some of his genes the farming gene is prevailing. When not making sheep noises he is pointing at tractors and paddling in the sea in water deeper than his wellies.
Granma and Pappa Curtis live near Winchester. Pappa is a farm worker and Granma is a domestic goddess. Pappa is always the first port of call when anything needs fixing and Granma keeps us well fed.
Grandma and Grandpa Battam are retired and live in South Devon. They are in charge of monitoring tanker movements on their river, nothing sails in or out without them noticing. When not tripping the light fantastic they can be found cruising the high seas or the A303.
Blog Archive
-
▼
2008
(44)
-
▼
March
(18)
- We've come a long way, baby.
- HAPPY EASTER EVERYONE!
- Good Friday
- Line Out!
- No News Today
- Tuesday 18th
- Monday 17th (ooh just realised it's six months tod...
- Sunday 16th March
- Posh tomato and cheese baguette
- Different Hospital, same Microwave meal.
- Home Alone again
- Thursday 13th March (2 weeks off 6 months!)
- Tuesday 11th March
- Tuesday 11th March
- More pics
- Thursday 6th March
- A Brave Little Girl
- News
-
▼
March
(18)
Other sites of interest
- Just a walk to the beach - help us raise money for Jeans for Genes and The Sick Children's Trust
- The Sick Children's Trust - working towards children never having to be separated from their families while in hospital receiving treatment for serious illnesses.
- The Anthony Nolan Trust - Taking back lives from leukaemia (and Wiskott-Aldrich!) Get on the register and SAVE SOMEONES LIFE!
- The Hairy Pot Plant Company - eco friendly gifts, buy some now!
- The Primary Immunodeficiency Association - Supporting people with and promoting awareness of primary immunodeficiencies and disorders of the immune system. They are currently funding some amazing research into Wiskott-Aldrich working towards a cure through gene therapy.
- Jeans for Genes - Helping children with genetic disorders.
- National Blood Service - Give them a pint of the red stuff whenever you can!
- David McNally - a 3 year old with WAS in America who has undergone BMT. A detailed account full of useful information but also a chance to share this family's journey through transplant.
2 comments:
Hi,
So pleased to hear that the hickman line is coming out in a safe environment - what a milestone !
Love,
Claire & Adrian
Just spoken to Jo who informed me that a lot of blogging has been going on since we last looked. We were sorry to hear that W. has an infection but pleased that your hospital stay didn't last too long. Keeping our fingers crossed that all goes well with the removal of the H. line and that W. is soon back on track.
Love to all
J & G xxx
PS. Must do something about that profile!
Post a Comment