We went up to GOS on Wednesday, which went well. William’s immune recovery continues..hoorah! Another tiring day but cheered to see Kellar much improved. We have restarted started sub cut Immunoglobulins at home until he makes enough of his own. We will be back up to GOS in a month. We are starting to see a few more (well) children in small numbers. William spent a lovely afternoon last week in a den with Eleanor and last weekend had a fabulous time with Sophia and Luca in the park.
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Greetings from California! I'm so glad to hear about Williams progress. I'll have to look into sub cut immunoglobulins given at home. Perhaps you could email me about that option. David is looking pretty good now that I'm using topic steroids twice/day. He actually looks wonderful. We keep teading water hoping this will end soon. Thinking of you always.
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