It is now 365 days since William received his stem cells and his new immune system. He continues to amaze and delight us. We have all come so far in the last year and it means so much to have had you share our WAS journey.
This will be our last entry on this blog. I pray we will never have cause to start another but we have found it quite therapeutic chatting to our computers and sharing our experiences with you all.
If you ever wonder how we are and think of looking at the blog, give us a call or send an e mail instead.
If you have stumbled across our blog and find yourself in need of someone to chat to about bone marrow transplant or Wiskott-Aldrich Syndrome then do send us an e mail.
with love
Catherine, Robert and William xx
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Hello and Welcome
Welcome to our blog chronicling William's Bone Marrow Transplant, a bit of general chit chat and any interesting, well we hope you will find them interesting, bits along the way. We look forward to your comments and if you have any questions or would like to send us a message do feel free to e mail us or leave a comment.
A bit about us
The Curtis family live not far from Bath. Robert is the Daddy and works for the National Trust as a gardener and enjoys being outside, he is the oldest sk8 boarder in the village. Catherine is the Mummy and is part of the Hairy Pot Plant Company http://www.hairypotplants.co.uk
Gillie is the dog (a black & white English Springer Spaniel, we couldn't afford the colour license, ha de ha) and guards us and makes big hairy muddy messes and we love him.
William is the boss and his birthday is 7th February, although he has problems with some of his genes the farming gene is prevailing. When not making sheep noises he is pointing at tractors and paddling in the sea in water deeper than his wellies.
Granma and Pappa Curtis live near Winchester. Pappa is a farm worker and Granma is a domestic goddess. Pappa is always the first port of call when anything needs fixing and Granma keeps us well fed.
Grandma and Grandpa Battam are retired and live in South Devon. They are in charge of monitoring tanker movements on their river, nothing sails in or out without them noticing. When not tripping the light fantastic they can be found cruising the high seas or the A303.
Gillie is the dog (a black & white English Springer Spaniel, we couldn't afford the colour license, ha de ha) and guards us and makes big hairy muddy messes and we love him.
William is the boss and his birthday is 7th February, although he has problems with some of his genes the farming gene is prevailing. When not making sheep noises he is pointing at tractors and paddling in the sea in water deeper than his wellies.
Granma and Pappa Curtis live near Winchester. Pappa is a farm worker and Granma is a domestic goddess. Pappa is always the first port of call when anything needs fixing and Granma keeps us well fed.
Grandma and Grandpa Battam are retired and live in South Devon. They are in charge of monitoring tanker movements on their river, nothing sails in or out without them noticing. When not tripping the light fantastic they can be found cruising the high seas or the A303.
Blog Archive
Other sites of interest
- Just a walk to the beach - help us raise money for Jeans for Genes and The Sick Children's Trust
- The Sick Children's Trust - working towards children never having to be separated from their families while in hospital receiving treatment for serious illnesses.
- The Anthony Nolan Trust - Taking back lives from leukaemia (and Wiskott-Aldrich!) Get on the register and SAVE SOMEONES LIFE!
- The Hairy Pot Plant Company - eco friendly gifts, buy some now!
- The Primary Immunodeficiency Association - Supporting people with and promoting awareness of primary immunodeficiencies and disorders of the immune system. They are currently funding some amazing research into Wiskott-Aldrich working towards a cure through gene therapy.
- Jeans for Genes - Helping children with genetic disorders.
- National Blood Service - Give them a pint of the red stuff whenever you can!
- David McNally - a 3 year old with WAS in America who has undergone BMT. A detailed account full of useful information but also a chance to share this family's journey through transplant.
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