Williams white cell count today is 5.54 hoorah! his platelets are 268!!! which is amazing. Those stem cells really are magic!! His neutrophils are 3.54 (over 1 is fab!!!) His lymphocytes are also there but I can't remember the number. I think it might be time to be more than cautiously optomistic!!!!!! Hoorah!!!
I have just been on a tube ride to Marble Arch for a spot of retail therapy (to prevent reoccurence of yesterday's fashion horror) and W is currently snoozing. It is pouring with rain in case anyone was wondering and have observed that people on the tube mainly wear black and don't smile!
Anyway enough idle chit chat
bfn C xx
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Hello and Welcome
Welcome to our blog chronicling William's Bone Marrow Transplant, a bit of general chit chat and any interesting, well we hope you will find them interesting, bits along the way. We look forward to your comments and if you have any questions or would like to send us a message do feel free to e mail us or leave a comment.
A bit about us
The Curtis family live not far from Bath. Robert is the Daddy and works for the National Trust as a gardener and enjoys being outside, he is the oldest sk8 boarder in the village. Catherine is the Mummy and is part of the Hairy Pot Plant Company http://www.hairypotplants.co.uk
Gillie is the dog (a black & white English Springer Spaniel, we couldn't afford the colour license, ha de ha) and guards us and makes big hairy muddy messes and we love him.
William is the boss and his birthday is 7th February, although he has problems with some of his genes the farming gene is prevailing. When not making sheep noises he is pointing at tractors and paddling in the sea in water deeper than his wellies.
Granma and Pappa Curtis live near Winchester. Pappa is a farm worker and Granma is a domestic goddess. Pappa is always the first port of call when anything needs fixing and Granma keeps us well fed.
Grandma and Grandpa Battam are retired and live in South Devon. They are in charge of monitoring tanker movements on their river, nothing sails in or out without them noticing. When not tripping the light fantastic they can be found cruising the high seas or the A303.
Gillie is the dog (a black & white English Springer Spaniel, we couldn't afford the colour license, ha de ha) and guards us and makes big hairy muddy messes and we love him.
William is the boss and his birthday is 7th February, although he has problems with some of his genes the farming gene is prevailing. When not making sheep noises he is pointing at tractors and paddling in the sea in water deeper than his wellies.
Granma and Pappa Curtis live near Winchester. Pappa is a farm worker and Granma is a domestic goddess. Pappa is always the first port of call when anything needs fixing and Granma keeps us well fed.
Grandma and Grandpa Battam are retired and live in South Devon. They are in charge of monitoring tanker movements on their river, nothing sails in or out without them noticing. When not tripping the light fantastic they can be found cruising the high seas or the A303.
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Other sites of interest
- Just a walk to the beach - help us raise money for Jeans for Genes and The Sick Children's Trust
- The Sick Children's Trust - working towards children never having to be separated from their families while in hospital receiving treatment for serious illnesses.
- The Anthony Nolan Trust - Taking back lives from leukaemia (and Wiskott-Aldrich!) Get on the register and SAVE SOMEONES LIFE!
- The Hairy Pot Plant Company - eco friendly gifts, buy some now!
- The Primary Immunodeficiency Association - Supporting people with and promoting awareness of primary immunodeficiencies and disorders of the immune system. They are currently funding some amazing research into Wiskott-Aldrich working towards a cure through gene therapy.
- Jeans for Genes - Helping children with genetic disorders.
- National Blood Service - Give them a pint of the red stuff whenever you can!
- David McNally - a 3 year old with WAS in America who has undergone BMT. A detailed account full of useful information but also a chance to share this family's journey through transplant.
8 comments:
Excellent ;0)
Wonderful news - things are starting to happen! Let's pray that everything is now on the up - you have all been through so much and coping so brilliantly. We are so proud of you all.
Love and hugs H & G
Dear Catherine, this is great news for you, Rob and William! I am at work giggling away at your funny prose. I really think you should write a book, you'd have people hooked! Lots of love Tasha xxx
Hooray indeed from Hampshire!
Keep those numbers rising, (or whatever is best for W)
Keep going Stem Cells,GO GO GO !
KFN x
PS a book is a very good idea...
Congratulations to William and his ever increasing blood components! It was so lovely to see you at the weekend and to wave to William, even if he was more interested in the digger!
Lots of love
Bxxxx
P.S. You could be the Bridget Jones of BMT's!
What a difference a day makes when you are counting cells! Well done William and your new bone marrow. Keep up the good work. Bob The Builder is coming to help tomorrow.
Lots of love Grandma and Grandpa xx
Great to hear your good news. We hope it keeps getting better and better. You always manage to sound so cheerful - this time you have something to be cheerful about. Hope you can meet up with Jo next week.
Love to you all, especially the brave little soldier. J & G xx
Hello Catherine, just been reading the blog, it has rained ALL day here too, quite a shock and all the wrong clothes ,I have put tights on today for the first time since about April.
I am hoping to see you next Wednesday when Doug comes to London too.
Pleased to hear about the 3.54, Annie has told me how they waited for 0.01 when Brian had his marrow many years ago, I think 1999.
Keep smiling, Love Phyllis CCCCCCCXXXXXXX
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