Monday +123 – Friday +127

We have made it through a whole week at home! (touch wood quickly, William has a teeny bit of a temperature!) It has been very tiring and I am still adjusting. William has still been unsettled at night although we have reduced the milk further. He has been in good spirits all week and lots of fun. Grandma and Grandpa came up on Tuesday and the day flew by. We went up to GOS on Wednesday. The journey went as well as could be expected although we arrived a little later than we had planned. Clinic was rather stressful. On arrival William spied a big ride on racing car and made a bee line for it, unfortunately we had to hold him back (physically) with his very noisy protests until we found out if he was noro virus negative and ok to mix with the other children. Fortunately he is, so we were able to let him play with everyone and all the toys and he was able to get on the car, much to everyone’s relief. We saw an immunology doctor who we had never met before, which is always useful!!! However, William is doing very well and they have reduced his immunosuppressive drugs further and we are in the process of reducing and removing his diuretics and anti sickness meds, so all good. We caught up with a few families who we know and some are doing well, others not so well. I went to see Claire, Adrian and Lucy who had just been admitted to Lion ward for the next stage of their fight to get Lucy well. I was SO impressed with Lucy who can not only correctly identify and say diamond but can also pick out colours in both English and French (I am sure it is just the age difference, she is almost 2 weeks older than William!! No pressure William but I am expecting great things from you in the next few days!!!) After about 3 hours in London we headed happily west again. Thursday and today have passed relatively uneventfully (which is the way we like it).