Sunday 27 January 2008

Update from home!

Friday +120 Saturday +121 and Sunday +122
We had a good night, despite me remembering at about 1am that I had forgotten William’s 10pm meds and leaping out of bed! Some of the milk giving equipment arrived but not all so we are making do for the moment and they are sending more bottles and piping (that’s not the technical term, funnily enough!) to arrive Saturday morning. William is a bit tired and breathing a bit heavily. His blood sample from Friday showed a low haemoglobin but was probably just a bit dilute, we had it repeated in Bath on Saturday morning when it was fine. He has been enjoying being at home and playing with all sorts of things (some that he shouldn’t!!) although has been tired. Granma and Poppa came to visit this morning and we all took Gillie for a walk and opened the last of our Christmas gifts! It was so lovely to see Gillie again, he is staying away for a few more days until we get ourselves more sorted and Wednesday’s trip to GOS out of the way. William has had two very unsettled nights with tummy ache. We have lowered the milk levels a bit now and are hoping for more than one hour of uninterrupted sleep at a time tonight!!

2 comments:

Aimee said...

That is wonderful news! Now comes the fun part with Hickman line care and trying to live infection free. We will continue to pray. I think it is just a matter of time before he is feeling energetic and on the path of full recovery. It's hard to keep those boys down. You made my day today!

Anonymous said...

It sounds as if you have your hands more than full, but you are doing a brilliant job. We remember you daily in our prayers and Mum keeps me posted if I miss your blog. Hope you all have a really good birthday next week. Much love, Margaret and Terry