Friday +43

Am tense today. This morning I left W for ½ hour with a rather glamorous volunteer (she works for the charity side of GOS attracting corporate and personal donations they are aiming for 50 million this year and have got 10 million from those lovely people at Morgan Stanley, there are some children here who have never been home because they are so poorly and the current facilities do not allow a parent to stay in the room with them) whilst I went to accommodation services to get Rob a room for tonight and tomorrow, which I did.. hoorah. W didn’t think much of being left with her and apparently ‘took a while to settle’ but was happily sitting on her lap reading a book when I returned. He also smelt of expensive perfume after she had left which was kinda weird! The consultant is still pleased with W and hopes we can leave here next thurs/fri and GO HOME!! Must not count chickens until we are in the car but it’s a promising indication. Anyway I am waiting for Rob to arrive now and can’t wait (not just because he is bringing Pizza!) I think that Lucy next door isn’t doing so well and I am so scared for her and her lovely parents. She (and they) have been through so much (she has had 6 rounds of chemo in 7 months prior to her transplant) and were at one stage likely to leave next week. Now W has a temp of almost 38 again and his oxygen levels are a bit low and the nurse is getting another probey bit just to be sure. Aargh, also being here on your own is really no fun, am such a wimp. Tried to be creative yummy mummy this afternoon but only had water colours which are a bit sophisticated to use with a 21 month old and a spare mouth swab sponge! We have played with most things quite a lot (but this is NOT a plea for more toys) what we really need is not to be stuck in this room (bloody virus!) (and to get safely home!) W wouldn’t eat any of the delicious morsels offered to him today except for 4 organix crunchy thingmy bobs which is also frustrating (although at least it is not my home made delicacies that I am chucking in the bin yet!) I have drawn up W’s medicines today and given them. He needs and will continue to need for a while medicines 6 times a day and all in all today I will have given him medicines 26 times (not all different things) today!