Wednesday + 41

Today I had a lovely lunch and catch up with Nicki and Ruth. Granma Ruth was able to come and spend some time with William to everyone’s delight. William has been a bit on the toasty side today and reached 38 degrees at one point so time to go to Bath! (previously we had to take him to the childrens ward at Bath hospital if his temp reached 38!) I’m fervently hoping that he doesn’t have an infection in his Hickman Line, the ends had a bit of a dunking in poo during a nappy overflow situation last night (not for the first, nor I expect the last time) anyway they all got cleaned up and the ends changed this morning and they have sent off cultures. His nappies have been a bit worse in frequency over the last 24 hours so rather than replace fluids IV as they did last night they have turned the milk down a bit. The extra nappies also mean that they have delayed the change of the Aciclovir to oral from IV until Friday if things are improved by then. They have also not reduced the TPN so we are a bit behind schedule for leaving next week but there is still hope... It’s a big day tomorrow, Rob and I are going out to lunch, together! It will be the first time that we have done anything together outside fox ward since W went into isolation (that’s about 48 days ago). Also its our ‘going home talk’ and Grandma is doing overtime so that we can relax and concentrate in the knowledge that W will be happy with her rather than random nurses. Not much sleep last night and have just got W back to sleep so will sign off and make the most of the moment of quiet (a noisy nurse is due to do some obs in a few minutes) and am typing in the dark and realising that it would help considerably if I could see the letters, my tiuch tyoing isn’t quite up to scritch!