More ramblings..

Wednesday +97
Mum was able to join me for the day. We went and saw the 2 sheep in Coram Fields who were looking a bit chilly, as were we! William has been in good form today. The milk is up to 11 mls and hour and his weight and fluid balances are more stable. His anti diorrhea secretion medicine has been reduced in strength with a view to stopping it all together by the end of the week. He did have Immunoglobulins last night but otherwise was very peaceful and I was able to watch Sense and Sensibility more or less uninterrupted. Unfortunately his sub cutaneous infusion decided that it wasn’t going to run through anymore at 5.45am this morning and we had to put another needle in which wasn’t a popular decision (with anyone). We did all get some more sleep though. Jack went home today which is marvellous. He had his transplant the day before William so they have been here all the while that we have. It will be weird not to see his parents around but we will keep our fingers firmly crossed for the future for them all. I also saw Justina and Eldoras our next door neighbours from Fox, they went home the Sunday before Christmas and are also doing well. It’s harder to get to know people on Robin because there is no sitting around in the corridor and we are all tucked behind double air lock doors but occasionally the kitchen provides a chatting opportunity. I have just worked out that William had been 40 days without milk or food so feel that we should celebrate the reintroduction of the milk a bit more…so HOORAH!

Thursday +98
A relaxing morning with my boy and then Granma and Poppa joined us for another expedition. Dressed for the Arctic conditions (although without the snow) we ventured back to see the sheep. William was reluctant to leave the park but much cheered by some sticking and drawing back in the room and lots of fun with Granma and Poppa and his new amazing collection of really large tractor posters (so thanks to all at New Holland, Claas and Massey Ferguson for brightening our walls and potentially those of the entire ward such are the size and number of posters). William has had a third virus free poo so Hoorah for that! His engraftment is still 100% so double hoorah! The platelets may have fallen because there is still comparatively little marrow producing the cells and they were putting all their efforts into helping William get through the line infection. He has had his last dose of antibiotics for that today. I had a lovely meal with Ruth and Phillip in the semi darkness of the room this evening mmm I love mango chicken! Must get back to my boys now (that is Ewan and Charley and their Long Way Down book)!

Friday +99
Moan, moan, moan, moan, and those nurses! and a lovely lunch in the room with Di! No, all is fine really, just a bit fed up of never having control of anything and always fitting around a schedule which changes at a moments notice and no one tells you about until it is actually happening! Surely I should be used to that by now though (says Rob, thanks for that! (who it transpires was referring to our life outside the hospital (can I remember what that was like?)) Confused? me too but a welcome return of the brackets!J William is fine and a happy chappy today even though our walk was rescheduled to after dark when the parks are all closed anyway and it was raining! Anyway Rob is back here today so must......aarggh go and stop that syringe driver beeping!!