Not really a Hijacking just until we have the "Just a Walk to the Beach" website up and running (which Dave and Cath are working on) I thought I would bring you all up to date with what is happening. The number of Long Distance Travellers has grown to 11 and they are coming from all directions (I will list them later). As you know we plan for the LDTs to meet on 14th September at Saunton sands to end their journeys in the surf. As we are all starting from different places and at different times we plan to have a launch party on the 24th May hopefully in North Devon this does depend on William’s health so it maybe a little closer to home. This is when we will be issuing sponsorship forms and T-shirts to the LDTs. As well as having a good time we will be taking photos to go on the website and to give to the press.
Now some of you are going to be left holding babies and small children while the rest of us are off having fun. So you don’t feel left out there will be a 10km walk along the Southwest Coastal path and back along the beach on the 14th. If all goes to plan as you get to the middle the LDTs will arrive so we can all do the last leg together.
Now the list it only seems fair to list in order of distance.
Steve will becoming from High Peak that’s somewhere up North.
Swimming to Devon in a pool Lisa (but never leaving Poynton, not sure if the pool will be full of water or wine).
To make sure Steve keeps to the speed limits he will be teaming up with Rob W in Stoke.
From London Tash and Jim, the rumour is on a tandem so that Jim does not have to wait at the top of every hill.
The Doctor on the team Dr Battam will be coming from Abingdon with his calculator to add up the money and miles but no plasters wrong kind of Doctor.
Coming from Basingstoke Andy with support car and plan to stay in 4 star hotels along the way. For others travelling in the same direction there will be room for luggage in the support car.
Once the website is finished and as long as his bike does not go missing Dave will be pedalling from Winchester.
Walking not cycling Rob C carrying an eight-foot surfboard, if only I was a body boarder.
From Church hill (Bristol) Ben carrying an egg or fish or maybe just a body board or even a kneeboard who knows.
From Plymouth B doing a bit of both walking and biking carrying a blow up toy (please remember there will be children on the beach). Note to other LDTs B has bagged the comedy surf transport only one blow up toy allowed and I want to see her standing up on it as she catches that wave.
Tuesday, 15 January 2008
Saturday, 12 January 2008
Week 16
Monday +102 (January 7th)
Rob is wending his way back to Holt as I write this and I am holding the fort here, although I so wish that we were with him. William is still doing well, they are dropping the TPN to 16 hours a day which is progress and his milk is up to 21mls an hour for 20 hours. He is not drinking very much and is putting on some weight so the reduced TPN and a lower fluid target will help that. His neutrophils are back under 1 again, hopefully they will settle a bit higher in time. The new student nurses have been annoying me today (with their giggling, inexperience and lack of common sense, I know they have to start somewhere but must it be with William!? At least they don’t get to handle any drugs!!) Otherwise we’re doing OK (I think!).
Tuesday +103
A lovely day with Grandma and William. A lovely walk in the park and a visit to the sheep. Rounds came and went, we are still in ‘wait and see’ land. Unfortunately William was sick at 10pm and brought up his NG tube. That was replaced relatively untraumatically and peace restored once more. TPN down to 12 hours so more line free time.
Wednesday +104
William was sick again at 6am but (touch wood) not since. This time the NG tube stayed down, phew! Granma Curtis joined us this afternoon and we had a lovely time playing and seeing the animals. William has needed IV fluids today to replace losses and help his kidneys which are struggling a bit. This will undoubtedly make him even puffier/heavier but this is the lesser of two evils. They have consulted the renal team and William is having an ultrasound on his kidneys tomorrow just to check them out. They think that it is probably the Cyclosporin (the immunosuppressant) that is causing the issues as it effect different people differently so they are going to start reducing the levels. They would reduce the levels soonish anyway as we are so far from the transplant date. We will have to be on the lookout for GVH as the levels reduce so time will tell (as it usually does!). Rob is joining me later (hoorah) we have a meeting with the ‘team’ tomorrow which is a new thing that they are introducing for their most loyal customers! Will tell you all about it tomorrow…. Grandma will also be with us tomorrow, so a full house and a chance for Mum and I to escape for a nice lunch together. Ooh news flash have just seen trailer for ER on More 4 so not long until it will be on ‘real’ TV (cos I really need more hospital drama!!! If only the docs here were that dishy!)
Happy Birthday B!!!
Thursday +105
Well we didn’t get off to a great start with Mum’s arrival delayed by a cancelled train but we went off to the meeting leaving William in the capable (!?) hands of a student nurse (knowing that mum was only minutes away!!) and he was fine and not crying when she arrived! The meeting was with the consultant Cathy, our doctor at the moment Zoe, our going home nurse Rachel (Clinical Nurse Specialist who is fab!), our favourite Robin nurse Hayley and the physical therapist Annabel. It was a very constructive meeting, Cathy summarised where we are now and Zoe nodded a lot. We talked of William’s progress and kind of jokingly said that we would like to have William home for his Birthday but it looks likely that it will take a lot longer than we had hoped/thought of late. We talked about the support we have received or not as the case may be and are now getting more frequent play assistant visits. We are also getting a poster to go on the door with William’s schedule on it and our names as we know the nurses names (generally without looking at their badges!) and they still call us Mum and Dad!?!?!? Apparently they found our feedback very useful and probably got more from the meeting than we did. Lets hope we see a bit more of Rachel soon!!!!
Mum and I scooted off for lunch (which was lovely particularly the Tiramisu!) and a tipple or two. Meanwhile Rob was summoned to Ultrasound for a peak at W’s kidneys which are fine to look at. We had a nice afternoon and another trip to see the sheep and lots of slides on the slide despite the rain. Rob headed off, Mum and I had dinner after William finally went to sleep and I tried (rather unsuccessfully for an early night) and Mum went to her lovely Sick Children’s Trust accommodation.
Friday +106
What a busy day. They are a bit concerned about his increasing weight and high levels of certain stuff in his kidneys so more investigations are being lined up. I was in the shower when the Doctor arrived so hastily dressed for our morning consultation. I was having my first cup of tea when we were summoned to x ray for a chest x ray. On our return the play assistant, Becky came bearing bubbles and stickers which went down a storm. After a sleep and lunch for the ‘grown ups’ we went down for another ECHO (ultrasound on his heart). William was very, very good and lay very still. We saw the other end of his Hickman line on the screen right in his heart!?!?!?!? They saw some fluid on his chest but the heart stuff seems fine. They have given him some oral diuretics to help shift the excess fluid/weight but are monitoring him at the moment and will see how he goes. His heart rate is quite high. Mum headed off and William and I went for a little wander in Russell Square. Rob came nice and early and William went to sleep eventually.
Rob is wending his way back to Holt as I write this and I am holding the fort here, although I so wish that we were with him. William is still doing well, they are dropping the TPN to 16 hours a day which is progress and his milk is up to 21mls an hour for 20 hours. He is not drinking very much and is putting on some weight so the reduced TPN and a lower fluid target will help that. His neutrophils are back under 1 again, hopefully they will settle a bit higher in time. The new student nurses have been annoying me today (with their giggling, inexperience and lack of common sense, I know they have to start somewhere but must it be with William!? At least they don’t get to handle any drugs!!) Otherwise we’re doing OK (I think!).
Tuesday +103
A lovely day with Grandma and William. A lovely walk in the park and a visit to the sheep. Rounds came and went, we are still in ‘wait and see’ land. Unfortunately William was sick at 10pm and brought up his NG tube. That was replaced relatively untraumatically and peace restored once more. TPN down to 12 hours so more line free time.
Wednesday +104
William was sick again at 6am but (touch wood) not since. This time the NG tube stayed down, phew! Granma Curtis joined us this afternoon and we had a lovely time playing and seeing the animals. William has needed IV fluids today to replace losses and help his kidneys which are struggling a bit. This will undoubtedly make him even puffier/heavier but this is the lesser of two evils. They have consulted the renal team and William is having an ultrasound on his kidneys tomorrow just to check them out. They think that it is probably the Cyclosporin (the immunosuppressant) that is causing the issues as it effect different people differently so they are going to start reducing the levels. They would reduce the levels soonish anyway as we are so far from the transplant date. We will have to be on the lookout for GVH as the levels reduce so time will tell (as it usually does!). Rob is joining me later (hoorah) we have a meeting with the ‘team’ tomorrow which is a new thing that they are introducing for their most loyal customers! Will tell you all about it tomorrow…. Grandma will also be with us tomorrow, so a full house and a chance for Mum and I to escape for a nice lunch together. Ooh news flash have just seen trailer for ER on More 4 so not long until it will be on ‘real’ TV (cos I really need more hospital drama!!! If only the docs here were that dishy!)
Happy Birthday B!!!
Thursday +105
Well we didn’t get off to a great start with Mum’s arrival delayed by a cancelled train but we went off to the meeting leaving William in the capable (!?) hands of a student nurse (knowing that mum was only minutes away!!) and he was fine and not crying when she arrived! The meeting was with the consultant Cathy, our doctor at the moment Zoe, our going home nurse Rachel (Clinical Nurse Specialist who is fab!), our favourite Robin nurse Hayley and the physical therapist Annabel. It was a very constructive meeting, Cathy summarised where we are now and Zoe nodded a lot. We talked of William’s progress and kind of jokingly said that we would like to have William home for his Birthday but it looks likely that it will take a lot longer than we had hoped/thought of late. We talked about the support we have received or not as the case may be and are now getting more frequent play assistant visits. We are also getting a poster to go on the door with William’s schedule on it and our names as we know the nurses names (generally without looking at their badges!) and they still call us Mum and Dad!?!?!? Apparently they found our feedback very useful and probably got more from the meeting than we did. Lets hope we see a bit more of Rachel soon!!!!
Mum and I scooted off for lunch (which was lovely particularly the Tiramisu!) and a tipple or two. Meanwhile Rob was summoned to Ultrasound for a peak at W’s kidneys which are fine to look at. We had a nice afternoon and another trip to see the sheep and lots of slides on the slide despite the rain. Rob headed off, Mum and I had dinner after William finally went to sleep and I tried (rather unsuccessfully for an early night) and Mum went to her lovely Sick Children’s Trust accommodation.
Friday +106
What a busy day. They are a bit concerned about his increasing weight and high levels of certain stuff in his kidneys so more investigations are being lined up. I was in the shower when the Doctor arrived so hastily dressed for our morning consultation. I was having my first cup of tea when we were summoned to x ray for a chest x ray. On our return the play assistant, Becky came bearing bubbles and stickers which went down a storm. After a sleep and lunch for the ‘grown ups’ we went down for another ECHO (ultrasound on his heart). William was very, very good and lay very still. We saw the other end of his Hickman line on the screen right in his heart!?!?!?!? They saw some fluid on his chest but the heart stuff seems fine. They have given him some oral diuretics to help shift the excess fluid/weight but are monitoring him at the moment and will see how he goes. His heart rate is quite high. Mum headed off and William and I went for a little wander in Russell Square. Rob came nice and early and William went to sleep eventually.
Monday, 7 January 2008
Just a walk to the beach up date
Just returned home to find a stack of emails from you mad people who have signed up to take part in this dash to the surf and sand. As I'm doing the walking Cath is doing the running of the back office. At present she is writing long lists of things to do but one thing we have decided is that the journey will end on Sunday 14th September. So start breaking in hiking boots, oiling bikes and waxing down surfboards. More news soon from Team Curtis.
Just a walk to the beach 
Saturday +100 and Sunday +101
100 days since transplant and all is well on that score so that is something to celebrate. Lets hope it won’t be long before we can head on home. We have spent a nice weekend all together and enjoyed our trips to the parks. The bare walls left by the removal of the Christmas cards and decorations have been more than filled by the enormous tractor posters and our exciting sticking collages! We had a nasty NG tube replacement incident on Saturday morning but we have all recovered now.
Saturday, 5 January 2008
More ramblings..
Wednesday +97
Mum was able to join me for the day. We went and saw the 2 sheep in Coram Fields who were looking a bit chilly, as were we! William has been in good form today. The milk is up to 11 mls and hour and his weight and fluid balances are more stable. His anti diorrhea secretion medicine has been reduced in strength with a view to stopping it all together by the end of the week. He did have Immunoglobulins last night but otherwise was very peaceful and I was able to watch Sense and Sensibility more or less uninterrupted. Unfortunately his sub cutaneous infusion decided that it wasn’t going to run through anymore at 5.45am this morning and we had to put another needle in which wasn’t a popular decision (with anyone). We did all get some more sleep though. Jack went home today which is marvellous. He had his transplant the day before William so they have been here all the while that we have. It will be weird not to see his parents around but we will keep our fingers firmly crossed for the future for them all. I also saw Justina and Eldoras our next door neighbours from Fox, they went home the Sunday before Christmas and are also doing well. It’s harder to get to know people on Robin because there is no sitting around in the corridor and we are all tucked behind double air lock doors but occasionally the kitchen provides a chatting opportunity. I have just worked out that William had been 40 days without milk or food so feel that we should celebrate the reintroduction of the milk a bit more…so HOORAH!
Thursday +98
A relaxing morning with my boy and then Granma and Poppa joined us for another expedition. Dressed for the Arctic conditions (although without the snow) we ventured back to see the sheep. William was reluctant to leave the park but much cheered by some sticking and drawing back in the room and lots of fun with Granma and Poppa and his new amazing collection of really large tractor posters (so thanks to all at New Holland, Claas and Massey Ferguson for brightening our walls and potentially those of the entire ward such are the size and number of posters). William has had a third virus free poo so Hoorah for that! His engraftment is still 100% so double hoorah! The platelets may have fallen because there is still comparatively little marrow producing the cells and they were putting all their efforts into helping William get through the line infection. He has had his last dose of antibiotics for that today. I had a lovely meal with Ruth and Phillip in the semi darkness of the room this evening mmm I love mango chicken! Must get back to my boys now (that is Ewan and Charley and their Long Way Down book)!
Friday +99
Moan, moan, moan, moan, and those nurses! and a lovely lunch in the room with Di! No, all is fine really, just a bit fed up of never having control of anything and always fitting around a schedule which changes at a moments notice and no one tells you about until it is actually happening! Surely I should be used to that by now though (says Rob, thanks for that! (who it transpires was referring to our life outside the hospital (can I remember what that was like?)) Confused? me too but a welcome return of the brackets!J William is fine and a happy chappy today even though our walk was rescheduled to after dark when the parks are all closed anyway and it was raining! Anyway Rob is back here today so must......aarggh go and stop that syringe driver beeping!!
Mum was able to join me for the day. We went and saw the 2 sheep in Coram Fields who were looking a bit chilly, as were we! William has been in good form today. The milk is up to 11 mls and hour and his weight and fluid balances are more stable. His anti diorrhea secretion medicine has been reduced in strength with a view to stopping it all together by the end of the week. He did have Immunoglobulins last night but otherwise was very peaceful and I was able to watch Sense and Sensibility more or less uninterrupted. Unfortunately his sub cutaneous infusion decided that it wasn’t going to run through anymore at 5.45am this morning and we had to put another needle in which wasn’t a popular decision (with anyone). We did all get some more sleep though. Jack went home today which is marvellous. He had his transplant the day before William so they have been here all the while that we have. It will be weird not to see his parents around but we will keep our fingers firmly crossed for the future for them all. I also saw Justina and Eldoras our next door neighbours from Fox, they went home the Sunday before Christmas and are also doing well. It’s harder to get to know people on Robin because there is no sitting around in the corridor and we are all tucked behind double air lock doors but occasionally the kitchen provides a chatting opportunity. I have just worked out that William had been 40 days without milk or food so feel that we should celebrate the reintroduction of the milk a bit more…so HOORAH!
Thursday +98
A relaxing morning with my boy and then Granma and Poppa joined us for another expedition. Dressed for the Arctic conditions (although without the snow) we ventured back to see the sheep. William was reluctant to leave the park but much cheered by some sticking and drawing back in the room and lots of fun with Granma and Poppa and his new amazing collection of really large tractor posters (so thanks to all at New Holland, Claas and Massey Ferguson for brightening our walls and potentially those of the entire ward such are the size and number of posters). William has had a third virus free poo so Hoorah for that! His engraftment is still 100% so double hoorah! The platelets may have fallen because there is still comparatively little marrow producing the cells and they were putting all their efforts into helping William get through the line infection. He has had his last dose of antibiotics for that today. I had a lovely meal with Ruth and Phillip in the semi darkness of the room this evening mmm I love mango chicken! Must get back to my boys now (that is Ewan and Charley and their Long Way Down book)!
Friday +99
Moan, moan, moan, moan, and those nurses! and a lovely lunch in the room with Di! No, all is fine really, just a bit fed up of never having control of anything and always fitting around a schedule which changes at a moments notice and no one tells you about until it is actually happening! Surely I should be used to that by now though (says Rob, thanks for that! (who it transpires was referring to our life outside the hospital (can I remember what that was like?)) Confused? me too but a welcome return of the brackets!J William is fine and a happy chappy today even though our walk was rescheduled to after dark when the parks are all closed anyway and it was raining! Anyway Rob is back here today so must......aarggh go and stop that syringe driver beeping!!
Thursday, 3 January 2008
Do You have anything better to do in September
Just a walk to the beach……
…to support Jeans for Genes and
The Sick Children’s Trust.
…to support Jeans for Genes and
The Sick Children’s Trust.
The Challenge
To get from your doorstep to Saunton Sands in North Devon by any means possible WITHOUT using an engine. You must take with you something to catch a wave with.
What do we need from you?
The commitment and resources to make your way from your home, camping as necessary en route to Saunton Sands to arrive on a specified day to catch that wave.
An enthusiasm for raising sponsorship and willingness to take part in any publicity surrounding the event to promote both of the charities and raise awareness.
Tuesday, 1 January 2008
Happy Holidays
Christmas Eve +88
Well we have a room full today as Grandma, Grandpa and Uncle Nick have landed to try and bring some sort of normality to Christmas. William continues to have high temperatures and is shaking a bit, the paracetamol does not seem to be doing much to control the temperture and William is off the scale on the thermometers. It was rounds today as tomorrow the consultant will be tucking into turkey at home and the ward will have weekend staffing levels. William is going to start milk feeds later on in the week but his fluid balance is a problem as he is holding onto too much liquid from his TPN so they are going to give him diuretics. This has made him very heavy and puffy and put his blood pressure up too. William has spent most of the day in his cot only to sit on mummy’s lap for a little while. This is the poorliest that he has been.
Christmas day +89
Merry Christmas
Well it’s raining and William rose late so we were not ready for the arrival of the Battam troop at just gone nine. He has been more chipper this morning but his temperature keeps breaking through the paracetamol. Father Christmas filled William’s stocking and a hospital pillowcase as well and then returned during the morning with dancing reindeer and another present. Grandma, Grandpa and Uncle Nick left for Christmas lunch at one of the local hostelries. William fell asleep and Cath and I had a quiet lunch. For all of you still getting over the stress of cooking Turkey and all the trimming here’s our menu: Veggie haggis, potato gratin, honey roasted carrots and parsnips served with port and cranberry sauce and not forgetting the bread sauce total cooking time eight minutes. No room for pud, which was good as Waitrose had run out! The best present we had was a norovirus negative stool sample only another two and the virus will be gone. Fingers crossed the next test is Thursday followed by Monday (New Year’s Eve).
Boxing Day +90
William continues to improve and the antibiotics seem to be doing the job. Grandma and Grandpa took Cath and Uncle Nick out for a nice lunch and a few drinks so William and I had the place to ourselves. Grandma brought back some cute min jam jar sized Heinz ketchups for Rob that were acquired (Lisa style!!) from the hotel and I think that they were his best present! We had lots of fun in the afternoon balloon modelling (that’s shaping them, not wearing them!)
Thursday +91
Milk feeds have started at one ml an hour for those of you still using old money that’s a teaspoon every five hours. This means we had the addition of another pump on the IV stand, bringing the number of machines to eight, putting the pouches of TPN almost out of reach of the nurses. We are also running out of electrical sockets as a number don’t work anyway. It was my turn to go out for lunch today as Grandma and Poppa came up and took Cath and I out for a burger. We stopped at the DVD store and spent some of William’s Christmas money for him on Curious George, which seemed to go down well. William awoke from his lunchtime nap and was delighted to find both sets of Grandparents in the room as Sue and Doug had baby sat while we were out.
Friday +92
Well we are not quite pacing the room but I sure the nurse was getting a little annoyed with us constantly asking whether the results were back yet. We have been waiting all day for the results from the stool sample taken yesterday and for engraftment test as well. Cath and I went down to Fat Face to spend vouchers and Christmas money and to make uses of the Battam Baby sitting Service or BBSS, before they pack up and head off back to the seaside. William’s temperature is around 37.5 for the last two days which is much better than 40 but not 36.5 which is normal but you find yourself being quite happy with any reading below 39 and it quickly becomes the norm. The milk feed continues to go well and is being increased at a ml an hour.
Saturday +93
We went outside!!!!!!!
Second stool sample norovirus negative!
Sunday +94
We went outside again!!!! With Granma and Poppa.
Monday +95 New Years Eve
We went outside again and saw Tasha!!!!
We are allowed out as long as we avoid strange people who might have lurgies and busy places. Fortunately there are a few small squares (with grass in!) around here that are not too busy, there are even wooden tractors in one of them! William was not at all fazed by his first trip outside but pointed excitedly at the cars, trees and lights. He even walked a little bit. It was amazing to all go out together as a family. His antibiotics are down to one and his platelet levels are recovering nicely after dipping down to a scary pre transplant 30. His neutrophils have been boosted a couple of times with a bit of GCSF so they are quite numerous at the moment. Rob and I saw the new year in with a little bottle of champagne.
Tuesday +96 New Year’s Day
HAPPY NEW YEAR!
Well we have a room full today as Grandma, Grandpa and Uncle Nick have landed to try and bring some sort of normality to Christmas. William continues to have high temperatures and is shaking a bit, the paracetamol does not seem to be doing much to control the temperture and William is off the scale on the thermometers. It was rounds today as tomorrow the consultant will be tucking into turkey at home and the ward will have weekend staffing levels. William is going to start milk feeds later on in the week but his fluid balance is a problem as he is holding onto too much liquid from his TPN so they are going to give him diuretics. This has made him very heavy and puffy and put his blood pressure up too. William has spent most of the day in his cot only to sit on mummy’s lap for a little while. This is the poorliest that he has been.
Christmas day +89
Merry Christmas
Well it’s raining and William rose late so we were not ready for the arrival of the Battam troop at just gone nine. He has been more chipper this morning but his temperature keeps breaking through the paracetamol. Father Christmas filled William’s stocking and a hospital pillowcase as well and then returned during the morning with dancing reindeer and another present. Grandma, Grandpa and Uncle Nick left for Christmas lunch at one of the local hostelries. William fell asleep and Cath and I had a quiet lunch. For all of you still getting over the stress of cooking Turkey and all the trimming here’s our menu: Veggie haggis, potato gratin, honey roasted carrots and parsnips served with port and cranberry sauce and not forgetting the bread sauce total cooking time eight minutes. No room for pud, which was good as Waitrose had run out! The best present we had was a norovirus negative stool sample only another two and the virus will be gone. Fingers crossed the next test is Thursday followed by Monday (New Year’s Eve).
Boxing Day +90
William continues to improve and the antibiotics seem to be doing the job. Grandma and Grandpa took Cath and Uncle Nick out for a nice lunch and a few drinks so William and I had the place to ourselves. Grandma brought back some cute min jam jar sized Heinz ketchups for Rob that were acquired (Lisa style!!) from the hotel and I think that they were his best present! We had lots of fun in the afternoon balloon modelling (that’s shaping them, not wearing them!)
Thursday +91
Milk feeds have started at one ml an hour for those of you still using old money that’s a teaspoon every five hours. This means we had the addition of another pump on the IV stand, bringing the number of machines to eight, putting the pouches of TPN almost out of reach of the nurses. We are also running out of electrical sockets as a number don’t work anyway. It was my turn to go out for lunch today as Grandma and Poppa came up and took Cath and I out for a burger. We stopped at the DVD store and spent some of William’s Christmas money for him on Curious George, which seemed to go down well. William awoke from his lunchtime nap and was delighted to find both sets of Grandparents in the room as Sue and Doug had baby sat while we were out.
Friday +92
Well we are not quite pacing the room but I sure the nurse was getting a little annoyed with us constantly asking whether the results were back yet. We have been waiting all day for the results from the stool sample taken yesterday and for engraftment test as well. Cath and I went down to Fat Face to spend vouchers and Christmas money and to make uses of the Battam Baby sitting Service or BBSS, before they pack up and head off back to the seaside. William’s temperature is around 37.5 for the last two days which is much better than 40 but not 36.5 which is normal but you find yourself being quite happy with any reading below 39 and it quickly becomes the norm. The milk feed continues to go well and is being increased at a ml an hour.
Saturday +93
We went outside!!!!!!!
Second stool sample norovirus negative!
Sunday +94
We went outside again!!!! With Granma and Poppa.
Monday +95 New Years Eve
We went outside again and saw Tasha!!!!
We are allowed out as long as we avoid strange people who might have lurgies and busy places. Fortunately there are a few small squares (with grass in!) around here that are not too busy, there are even wooden tractors in one of them! William was not at all fazed by his first trip outside but pointed excitedly at the cars, trees and lights. He even walked a little bit. It was amazing to all go out together as a family. His antibiotics are down to one and his platelet levels are recovering nicely after dipping down to a scary pre transplant 30. His neutrophils have been boosted a couple of times with a bit of GCSF so they are quite numerous at the moment. Rob and I saw the new year in with a little bottle of champagne.
Tuesday +96 New Year’s Day
HAPPY NEW YEAR!
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