Saturday 10 November 2007
Live from Tuttis (my internet cafe!)
It's all storms in tea cups. William's temp is still up and down but not a real cause for doctorial concern (just parental!) No oxygen required although his breathing today is still quite shallow and fast but I digress. Lucy is OK, her Mum says that she has a leaky valve in her heart due to all the chemo but that they can treat it with drugs and keep an eye on it but at least it explains why she has been needing a bit of oxygen. Clare (her Mum) is SO brave and seems to take pretty much anything in her stride, I am sure that I, like many others would be freaked out by developments of that sort. I really admire her. She has said that at times during her illness they have cried for days but I have never seen her less than together (but not in a cold uncaring way) she always finds time to wave at William through the window and find out how we are. She thinks that they are still on track to leave at the end of next week. Rob arrived safely last night and W woke up to say hello shortly afterwards and they had a ball! He had some blood overnight to boost his haemoglobin but otherwise nothing much else to report yet. Back to watch Babe later on, even W has tired somewhat of Tractor Ted!!!!
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4 comments:
Keeping our fingers crossed for William to be given the all clear to go home very soon. I'm sure you'll be anxious when you're on your own but hopefully there will be lots of suuport on hand.
Love to all
J & G x
Just had a lovely time catching up on your recent updates. It's blowing a gale up here in the attic. S appears to be embarking on unplanned attic activity, removing lots of copper piping and a serious amount of insulation last weekend, muttering something about needing new perlins (?) and holes in wall of house to get them out and new ones in. Still I suppose we have at least 5 months to go until that happens...
Gosh you are all doing brilliantly, I am in awe of your ability to function on miniscule levels of sleep and to cope with it all. Great to see photo of W in his new crocs, biggest hug to him from all of us (the sort we used to reserve for the pizza parlour in Hillsborough!) Fingers crossed for home. W will soon start eating when Mummy and Daddy are cooking. Prayers also for all the other families you are sharing your lives with.
Love you lots
Josie M xx
Still keeping an eye on your updates! Keeping fingers crossed for an imminent release. Must be driving you mad being stuck in the same room all the time, ho hum!
BTW, Rob's talk at the primary school in Chippenham, my little half-sister (recently re-aquanted) was one of his audience... she says it was very interesting! Well done Rob.
Love
The Mundy's xxxx
Thank you for the massive update! The photos are always a welcome sight too. William has grown up since I last saw him - like you say in your post it feels as if time has stood still and he is the same age as when he went into GOSH. I am keeping my fingers crossed for the imminent release and return to home cooked food!
Lots of love Bxxxxx
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