No sign of a removal van yet so we are staying put on this ward for the moment. A quiet night on the nappy front but catch up explosions whilst changing him this morning meant that Grandma arrived to find me standing in a puddle of poo, now that’s a great start to any day!!!! They have had a cancellation to the endoscopy and colonscopy will now be on Friday late morning. The specialist nurse is coming by tomorrow to explain the nitty gritty and discuss and preparations that we need to make so we will know more then. I had a lovely lunch with Phyllis in Covent Garden (courtesy of Helene and George, so thanks!!) and we did a spot of shopping in the market which was fun. The music lady visited William briefly today with her keyboard and drums, unfortunately I missed it but I have seen the pictures and he was having a blast! I hope that she can come again but only does one day a week and covers 4 wards, it’s such a shame there are not more ‘music people’ it gives the children such a boost and must be so therapeutic. William has had bizarrely red feet at about 5.30 for the past 2 evenings, we can’t seem to figure out why, but red feet and palms are a sign of GVH so it may be that. Tonight the Doctor managed to get here before they faded again (they are red for about an hour) and said that yes there was no denying that they were red feet!! He is joined up to an astonishing 5 machines this evening, so much fluid I don’t know where it all goes (that’s not strictly true, we see a lot of it again in nappies!). I must go because he has a bit of tummy ache and needs soothing.
Happy Birthday Lisa!!!!
No comments:
Post a Comment